{"id":51575,"date":"2026-02-05T08:49:37","date_gmt":"2026-02-05T08:49:37","guid":{"rendered":"https:\/\/www.elza-institute.com\/?p=51575"},"modified":"2026-02-09T20:44:55","modified_gmt":"2026-02-09T20:44:55","slug":"pediatric-keratoconus-screening-public-health","status":"publish","type":"post","link":"https:\/\/www.elza-institute.com\/pt\/pediatric-keratoconus-screening-public-health\/","title":{"rendered":"Nikki Hafezi sobre ceratocone pedi\u00e1trico, sa\u00fade p\u00fablica e pol\u00edtica"},"content":{"rendered":"
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Prevenir a cegueira antes de ela come\u00e7ar: Nikki Hafezi sobre ceratocone pedi\u00e1trico, sa\u00fade p\u00fablica e pol\u00edtica<\/h3>\n

O ceratocone \u00e9 frequentemente enquadrado como uma doen\u00e7a refractiva ou da c\u00f3rnea. Na realidade, \u00e9 um desafio de sa\u00fade p\u00fablica com consequ\u00eancias para toda a vida se n\u00e3o for detectado - especialmente em crian\u00e7as. Em uma recente discuss\u00e3o em podcast com Dr. Madhi Wahib<\/a> no seu podcast, Wahibtalks, Nikki Hafezi, MAS IP ETHZ,<\/a> Diretor Executivo do Instituto ELZA (Zurique) e Diretor Executivo da EMAGine AG, explicou por que raz\u00e3o a dete\u00e7\u00e3o precoce, a epidemiologia e a pol\u00edtica s\u00e3o agora fundamentais para a forma como o ceratocone deve ser tratado a n\u00edvel mundial. <\/span><\/p>\n<\/article>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Queratocone em crian\u00e7as: Um perfil de doen\u00e7a diferente<\/h3>

Do ponto de vista cl\u00ednico, o ceratocone pedi\u00e1trico comporta-se de forma diferente da doen\u00e7a do adulto. A progress\u00e3o \u00e9 tipicamente mais r\u00e1pida, mais agressiva e est\u00e1 intimamente ligada a altera\u00e7\u00f5es hormonais por volta da puberdade. Na altura em que a perda visual se torna sintom\u00e1tica, podem j\u00e1 ter ocorrido danos estruturais significativos na c\u00f3rnea. Esta realidade biol\u00f3gica est\u00e1 na base da justifica\u00e7\u00e3o para um rastreio sistem\u00e1tico em vez de um diagn\u00f3stico orientado para os sintomas.<\/p>

Porque \u00e9 que a dete\u00e7\u00e3o precoce \u00e9 mais importante do que apenas o tratamento<\/h3>

Atrav\u00e9s do seu trabalho com a Light for Sight Foundation, Nikki Hafezi ajudou a moldar uma estrutura assente em quatro pilares: acesso \u00e0 tecnologia, contacto com popula\u00e7\u00f5es em risco, educa\u00e7\u00e3o m\u00e9dica e investiga\u00e7\u00e3o. No centro desta abordagem est\u00e1 a epidemiologia. Os dados de preval\u00eancia em larga escala n\u00e3o se limitam a quantificar o peso da doen\u00e7a; eles redefinem a forma como o ceratocone \u00e9 classificado nos sistemas de sa\u00fade.<\/p>

O estudo K-MAP e o mito de que o ceratocone \u00e9 uma doen\u00e7a rara<\/h3>

O estudo K-MAP (Keratoconus Mapping and Prevalence - Mapeamento e Preval\u00eancia do Ceratocone) exemplifica esta mudan\u00e7a. Come\u00e7ando com uma coorte piloto na Ar\u00e1bia Saudita e expandindo-se globalmente, o K-MAP j\u00e1 incluiu quase 20.000 crian\u00e7as e adolescentes. As primeiras descobertas demonstram taxas de preval\u00eancia muito mais altas do que historicamente se supunha, desafiando a no\u00e7\u00e3o h\u00e1 muito mantida de que o ceratocone \u00e9 uma doen\u00e7a rara. Esta distin\u00e7\u00e3o \u00e9 importante: as doen\u00e7as classificadas como \u201craras\u201d s\u00e3o frequentemente exclu\u00eddas dos programas nacionais de rastreio e das vias de reembolso.<\/p>

Barreiras ao rastreio e o papel da imagiologia port\u00e1til<\/h3>

No entanto, a dete\u00e7\u00e3o por si s\u00f3 n\u00e3o \u00e9 suficiente. Os actuais dispositivos de diagn\u00f3stico padr\u00e3o-ouro, como a tomografia da c\u00f3rnea baseada em Scheimpflug, s\u00e3o precisos mas dispendiosos e logisticamente inadequados para o rastreio escolar em grande escala. Para colmatar esta lacuna, est\u00e3o a ser desenvolvidas novas abordagens, incluindo solu\u00e7\u00f5es de imagiologia da c\u00f3rnea port\u00e1teis, baseadas em smartphones, concebidas para utiliza\u00e7\u00e3o no terreno - \u00e0 semelhan\u00e7a dos recentes avan\u00e7os que tornaram o cross-linking da c\u00f3rnea mais acess\u00edvel em todo o mundo.<\/p>

Dos dados cl\u00ednicos \u00e0 pol\u00edtica de sa\u00fade<\/h3>

Para al\u00e9m do rastreio, Hafezi salientou a import\u00e2ncia de traduzir os dados cl\u00ednicos em linguagem pol\u00edtica. As avalia\u00e7\u00f5es da tecnologia da sa\u00fade demonstram que o rastreio pedi\u00e1trico a n\u00edvel nacional \u00e9 economicamente favor\u00e1vel quando comparado com os custos sociais a longo prazo da perda de vis\u00e3o, do d\u00e9fice de educa\u00e7\u00e3o e da exclus\u00e3o da for\u00e7a de trabalho. Neste contexto, a preven\u00e7\u00e3o n\u00e3o \u00e9 apenas clinicamente correta, mas tamb\u00e9m fiscalmente respons\u00e1vel.<\/p>

Um modelo de sa\u00fade p\u00fablica para a preven\u00e7\u00e3o do ceratocone<\/h3>

Esta perspetiva de sa\u00fade p\u00fablica tamb\u00e9m informa iniciativas mais amplas na \u00c1sia Central, onde os dados epidemiol\u00f3gicos est\u00e3o a ser utilizados para orientar o desenvolvimento de infra-estruturas, atrair investimentos e conceber redes sustent\u00e1veis de cuidados oftalmol\u00f3gicos.<\/p>

A mensagem \u00e9 clara: o tratamento do ceratocone n\u00e3o pode mais come\u00e7ar apenas no diagn\u00f3stico. Ele deve come\u00e7ar mais cedo - antes da perda visual, antes da progress\u00e3o e antes que a oportunidade seja perdida. Para a ELZA, isso se alinha com um princ\u00edpio fundamental: preservar a vis\u00e3o significa agir cedo, agir sistematicamente e basear as decis\u00f5es em dados e n\u00e3o em suposi\u00e7\u00f5es.<\/p><\/article>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Porque \u00e9 que o rastreio precoce do ceratocone em crian\u00e7as \u00e9 essencial para prevenir a perda de vis\u00e3o e a incapacidade a longo prazo.<\/p>","protected":false},"author":4,"featured_media":51581,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1,223,96],"tags":[1501,1500,679,1592,1191,1318,1192,711,1502,1186,1591,987],"class_list":["post-51575","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-general-news","category-nikki-hafezi","category-popular-press","tag-corneal-cross-linking-prevention","tag-early-detection-keratoconus","tag-elza-institute","tag-interview","tag-k-map-study","tag-keratoconus-epidemiology","tag-keratoconus-prevalence","tag-keratoconus-screening","tag-pediatric-eye-screening","tag-pediatric-keratoconus","tag-podcast","tag-public-health-ophthalmology"],"acf":[],"yoast_head":"\nNikki Hafezi on Pediatric Keratoconus, Public Health, and Policy - 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