Nikki Hafezi

Nikki Hafezi Challenges the Rare Disease Status of Keratoconus

Hafezi addressed the widespread reliance on a 1986 prevalence estimate that places keratoconus at 1 in 2,000—formally classifying it as rare. Yet as she highlighted, emerging epidemiological data tell a starkly different story. Keratoconus is an orphan disease, not a rare one.

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TOS 2025: Advanced CXL and DS advocacy

During this visit to TOS 2025, Prof. Hafezi presented ECO-CAIRS and ELZA-PACE and highlighted the Light for Sight Foundation’s work to improve care for children with Down Syndrome.

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